National Organization for Rare Disorders (NORD): Research Grants (LOI)

Scientific studies and/or clinical research studies to address below orphaned rare diseases.

* Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV): 1 grant of up to $50,000

* Appendix Cancer and Pseudomyxoma Peritonei (PMP): 2 grants of up to $50,000

 *Familial Hypercholesterolemia: 1 grant of up to $50,000

* Malonic Aciduria –1 grant of up to $80,000

* New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES): up to $100,000

* PACS1-Related Syndrome (Schuurs-Hoeijmakers Syndrome):1 grant of up to $45,000

* Primary Orthostatic Tremor: 1 grant of up to $41,000

https://rarediseases.org/for-clinicians-and-researchers/research-opportunities/requests-proposals/