Lowe Syndrome Association - LSA
פרופילי מימון
פתוח לחברי סגל הטכניון בלבד. אנא התחבר\י כדי לצפות בפרופילי המימון של הקרן (בפינה הימנית העליונה).The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome (LS), a rare genetic condition that affects boys. We've been working since 1983 to develop a community of support and encouragement for families affected by LS.
Our work is guided by our purposes:
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to foster communication among families
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to promote a better understanding of the syndrome
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to provide medical and educational information
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to encourage and support research.
פרטי קשר:
LSA
PO Box 864346
Plano, Texas 75086-4346
Phone: 972-733-1338
הקרן אינה קרן תחרותית.
אתר הבית: http://www.lowesyndrome.org/